This feels like the beginning of a new chapter for Long Covid SOS — one grounded firmly in lived experience, collaboration, and the unwavering belief that patients must remain at the centre of every conversation, every policy decision, and every research agenda about Long Covid.

From 19 to 25 October 2025, the UK will mark Invisible Disabilities Week, a time to celebrate strength, raise awareness, and recognise the millions of people living with conditions that may not be seen but are deeply felt.

Overwhelm, the theme of this year’s World Mental Health Day is one that resonates deeply with our community. Long Covid SOS volunteer Sarah Barley-McMullen shares important insights on how to cope with Long Covid and feelings of being overwhelmed.