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FUND LONG COVID RESEARCH

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Six Years On: Fund Long Covid Research

Six years after the start of the pandemic, millions of people across the UK are still living with Long Covid. Many remain unable to work and face uncertainty about their health and future.

This Long Covid Awareness Day, Long Covid SOS is calling for sustained funding for Long Covid research. Without long-term investment, researchers cannot fully understand the condition, develop effective treatments,

or improve care for the millions of adults and children affected.

We have sent an open letter to MPs urging them to support sustained research funding and raise the issue in Parliament.

Contact your MP and ask them to support Long Covid research funding.


It only takes a minute to send our template letter.

ONDINE SHERWOOD

We are heartbroken to share the loss of our co-founder, CEO, and beloved friend, Ondine, who passed away on Tuesday 11th March 2025.

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NEW UPDATED GP LEAFLET

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We have worked with the RCGP and the Clinical Post Covid Society to completely revise and expand our GP leaflet.  It now provides an even more comprehensive guide to diagnosing and treating Long Covid

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Read our Press Release here

To complement the leaflet for GPs we have some sound advice and a checklist for people with Long Covid preparing to visit their GP

RESOURCES PAGE PUBLISHED

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We are delighted to announce that our brand new RESOURCES page is now live!

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LONG COVID BILL OF RIGHTS

LONG COVID SOS MERCHANDISE

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We are very excited to launch our  fabulous new Long Covid SOS merchandise.  Choose from amazing designs and logos on a range of products including T-shirts, hoodies, mugs, bags, hats and more - and support our work at the same time

LATEST NEWS

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LATEST DATA

ONS data published 25/04/2024: November 2023 to March 2024.  These figures are from 'Wave 4': 6 February to 7 March 2024.  Figures relate to England and Scotland, not the UK

  • 2 million people have Long Covid in England and Scotland: 3.3% of the population
  • 87.3% first had symptoms at least 12 weeks previously - approx 1.7 million
  • 71.1% or 1.4 million developed symptoms at least a year ago
  • 51.3% or 1 million have had symptoms 2 years or longer 
  • 30.6% or 732,000 have been unwell for at least 3 years - this is the largest category
  • 111,800 children aged 3-17 now affected
  • 1.5 million people or 74.7% have symptoms adversely affecting their lives
  • 381,000 (19.2%) report that their ability to undertake their day-to-day activities are "limited a lot"
Highest prevalence as a % of the population:
  • Age 45-54 (5%)
  • North West (3.8%)
  • Greatest deprivation (5.6%)
  • Asian or Asian British (4.1%)
  • Inactive - not looking for employment (9.1%)
  • 1.1 million report that symptoms worsen following physical and/or mental effort, including 65.7% of 18-34 year olds 
  • Fatigue, shortness of breath, difficulty concentrating and muscle ache were the top 4 most common symptoms
  • The most deprived are twice as likely to have Long Covid compared to the most well off

#LONGCOVIDSOS

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DISCLAIMER

Long Covid SOS provides information on this website but it is not a replacement for advice from your doctor or other healthcare professional.

Always consult your doctor or healthcare professional if you have any concerns about your health. Long Covid SOS is not responsible or liable, directly or indirectly, for any damages resulting from the use of information contained within this site. This website contains links to other sites, but this does not imply endorsement of their content, nor are we responsible for their content.

Long Covid SOS Charity registered in England & Wales no 1199120 

© 2026 Long Covid SOS

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