About Us

LongCovidSOS was established in June 2020 during the early months of the pandemic and is staffed entirely by volunteers with lived experience of Long Covid.

We have played a major role in generating awareness of the condition through social media and press campaigning.  The group works closely with the NHS, Dept for Health and Social Care, NICE, ONS, NIHR and the WHO and also collaborates with researchers in order to further our aims of Recognition, Research and Rehabilitation for people with Long Covid.  Moving forward the group aims to continue to be an active voice, providing an informed and lived experience perspective to national and international organisations as well as the research community

Meet The Team