MEET THE TEAM

Co-Founder and CEO

Ondine had a Covid-19 infection in March 2020 and after failing to recover became one of the founding members of LongCovidSOS, where her focus is on campaigning.  Ondine is an IT professional, an HRA Research Ethics committee member, and has a Master’s in PPE of Health from UCL.  She is a former PPV4 partner for NHS England, and is a member of the NHSE Long Covid Taskforce, the NIHR Expert Group on Long Covid and is on the steering committee for the STIMULATE-ICP study 

Volunteer

Helen worked as an Archaeological Illustrator for 25 years after gaining a degree in Graphic Design and Scientific Illustration from Middlesex University. She retrained as a Silversmith and Jeweller at Central St Martins in 2019.

Helen has been suffering with Long Covid since contracting the virus in the first wave, March 2020. She has become a patient advocate for people suffering with Long Covid and is passionate about being a voice and campaigner for others suffering with this debilitating illness.

Volunteer

Garry served in the British Army for 25 years.  He contracted COVID-19 in December 2020.

As Garry loves the sea he now applies a daily mantra close to his heart: "One day, one wave at a time" in order to battle his own Long Covid. 

Garry is highly driven to support, help and guide people in the best way he can, by becoming a voice for those that need one.

Volunteer

Sarah is a former University Diversity and Inclusion Lead and Senior Lecturer. Having retired in March 2022, due to Long COVID, she set up an inclusion and belonging consultancy called, ‘Be Longing for Change’, Since then she has become an Associate of the National Youth Agency, where she is working on the creation of new National Youth Work practice standards for Equality, Diversity, and Inclusion.

Sarah lives with Long COVID and navigates the challenges and impact this has on her life in a glass half full way. She is a fierce advocate for others living with Long COVID, and also works as a PPV for NHS England, where she contributes to policy, messaging, and primary care training resources on Long COVID.

Sarah is a Trustee for Derby Diocesan Board of Education, as a Youth Work and Equality, Diversity and Inclusion (EDI) specialist. She became a Stonewall Role Model in 2019, the same year she set up Pride in Belper, a community interest group who were shortlisted for LGBT+ Community Organisation of the Year in the National Diversity Awards 2021-22. Sarah is married to Helen, and they are both owned by their cockapoo called Steve.

Volunteer

Janet has dedicated her professional life to working alongside social movements, and founding and running a non-profit. Quakers and Amy Goodman (Democracy Now!) helped turn her into campaigner as a teenager in the US, and she hasn't stopped since. She is a "first waver" - she got sick in April 2020 and never recovered. Since then she met her fellow sick activists online, and started learning about disability justice and the history of people fighting for help with chronic illness. She helps Long Covid SOS with fundraising and strategy.

Volunteer

​Yvonne trained and performed in IDTA dance, and was accepted into a recorder orchestra from a very young age.  She trained as a Financial Advisor later transforming to a worldwide advertising company paper based and digitally helping customers promote their business whether small or large. Yvonne also worked for a telecommunications organisation for over 10 years  in various roles from customer service training and business sector account manager. She loved travelling and exploring different countries as well as singing in a choir, dancing snorkelling and swimming before becoming very ill.
Yvonne now lives with Long Covid after contracting Covid-19 in March 2020. Her desire is to be an advocate reaching out to individuals and carers who do not realise they or someone they know has this condition.