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Recognition - Research - Rehabilitation
BLOG POSTS
Long Covid SOS
Oct 23, 20243 min read
Invisible Disabilities Week: What You Can’t See Can Still Hurt
The unifying reality of the experience of living with an invisib is that what you can’t see can still hurt—
often more than people realise.
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Long Covid SOS
Oct 10, 20242 min read
The Importance of Good Mental Health When Living With Long Covid
Good mental health is more important than ever when living with Long Covid...
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Long Covid SOS
Sep 30, 20245 min read
Black History Month: We Must Do More Than Acknowledge, We Must Act!
As we enter Black History Month, we honour the rich histories, cultures, and contributions of Black communities and other people of colour.
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Long Covid SOS
Sep 16, 20243 min read
Pain Awareness Month: Understanding Chronic Pain in the Context of Long Covid
Chronic pain can change any aspect of a person's life, from how they move, think and sleep to how they spend time with loved ones...
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Long Covid SOS
Jun 3, 20243 min read
The Right to Funded Research:
Including Lived Experience at its Heart. In this the fifth and final instalment of our series unpacking the principles within the Long...
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Long Covid SOS
May 28, 20243 min read
People with Long Covid Need Vaccine Boosters: Protecting the Vulnerable and Addressing Health Inequalities
The Covid-19 pandemic has left an enduring mark on countless lives across the globe. In England and Scotland alone, over 2 million people ha
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Long Covid SOS
May 13, 20244 min read
We should not have to self advocate for clean air and care.
In the fourth instalment of our series of Blog Posts unpacking each principle within the Long Covid SOS Bill of Rights, we explore the cruci
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Long Covid SOS
May 3, 20243 min read
Volunteering taught me how charities like Long Covid SOS provide vital lifelines for their followers
I volunteered as a social media assistant for Long Covid SOS from October 2023 to April 2024. My godmother, also a volunteer for the charity
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Long Covid SOS
Apr 16, 20243 min read
The Right to Support:
In the third instalment of our series of Blog Posts  unpacking each principle within the Long Covid SOS Bill of Rights, we look at the
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Long Covid SOS
Apr 4, 20243 min read
Navigating the Rocky Road: The Essential Right to a Diagnosis with Long Covid
In the second of our Blog Posts detailing each of the ‘rights’ in our Long Covid ‘Bill of Rights’, this time we focus on the ‘the right...
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Ondine Sherwood
Mar 21, 20242 min read
The Importance of Being Believed when you have Long Covid
The sentiment expressed in the first principle of the Long Covid SOS Bill of Rights, "The Right to be Believed," resonates deeply with the
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Long Covid SOS
Mar 15, 20242 min read
Why create a Long Covid Bill of Rights?
As an advocacy charity, we know so many people with Long Covid are dismissed and feel isolated. We're demanding basic rights for LC people
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Long Covid SOS
Mar 14, 20243 min read
Reflections, awareness? This is what it means to me.
Long Covid Awareness Day is nearly here. Those of us living with Long Covid, we are aware of it every day. It's within us, almost serpentine
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Long Covid SOS
Feb 2, 20243 min read
Emma Samms, Long Covid SOS patron, writes about living with an Invisible Illness - Long Covid
Please don’t tell me I’m looking well. Of course, when I’ve prepared for you to see me, I am looking well. As an actress, it’s my job.
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Long Covid SOS
Nov 16, 20232 min read
Disability History Month in the UK Long Covid: A New Disability
From November 16th to December 16th, the UK celebrates Disability History Month (UKDHM), providing a platform to explore the historical,...
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Long Covid SOS
Nov 1, 20232 min read
Where would you be if you could?
I Would be Here If I Could... Is an ambitious and disruptive art project which will be traveling
around the UK next year. Created by Alison
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Long Covid SOS
Jun 8, 20232 min read
The Cost of Friendship Can be Worth its Weight in Gold.
Some say that you really find out who your friends are when you become chronically ill. It’s true to some extent but friendship is still a
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Long Covid SOS
May 31, 20233 min read
We need Inclusive Advocacy for LGBTQ+ People Living with Long Covid and other Chronic Conditions.
Throughout Pride Month we are highlighting the inclusive advocacy needed for LGBTQ+ people living with Long COVID & other chronic condions
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Long Covid SOS
May 16, 20233 min read
Nurturing Mental Health: A Vital Journey for Those Living with Chronic Conditions
Throughout Mental Health Awareness week we will being focusing on Long Covid Wellbeing.
Living with a chronic condition such as Long Covid
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Long Covid SOS
Apr 20, 20233 min read
Joe is running the London Marathon to support Long Covid SOS - here is his story
I’m Joe and I’m running the London Marathon on 23rd April this year and raising money for Long Covid SOS. I’m 30 years old and live in Manch
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Long Covid SOS
Mar 28, 20233 min read
Charlie Russell: a statement
We have received many messages of support about Charlie's challenge to trek to Everest Base Camp in aid of Long Covid SOS. Some people howe
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Garry Loftus
Mar 23, 20234 min read
The completion of I remember: Scotland’s Covid Memorial, three years since the first lockdown
People in Scotland fell silent today to mark a day of reflection and to remember those lost or affected by the Pandemic.
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Long Covid SOS
Feb 20, 20235 min read
Charlie's challenge to climb to Everest Base Camp to raise funds for Long Covid
Charlie Russell is doing something amazing - climbing to Everest Base Camp with his dad and brother in aid of Long Covid SOS.
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Long Covid SOS
Dec 23, 20221 min read
Introducing: Long Covid Christmas Bingo!
Many of us will be meeting up with friends and family over the festive season - safely if possible.
Inevitably, people will be asking us h
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Long Covid SOS
Aug 29, 20224 min read
All change! Riding the Long Covid Express
When my daughter, Rosie (17), had a mild dose of Covid-19 in September last year, I never dreamed how fundamentally it would change her life
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Long Covid SOS
Aug 8, 20223 min read
What is the Long Covid SOS Take the Plunge Campaign?
Last month we launched our 'Take the Plunge' campaign. You might be wondering how you can join in and help us raise funds for Long Covid SOS
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Long Covid SOS
Jul 8, 20221 min read
Take the Plunge and help raise funds for Long Covid SOS Charity!
To launch our charity can you Take the Plunge for LongCovidSOS?
Have a sponsored splash any way you are able so we can continue to send out
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Long Covid SOS
Jun 30, 20223 min read
Long Covid – a turning point in Tribunal claims?
There has been a very interesting decision of the Scottish Employment Tribunal that has recently ruled that an individual suffering from lon
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Karen Matthews
May 16, 20221 min read
Qualitative (Interview based) Research Study in Chronic Pain - Call for Participants
We have been contacted by an MSc student about an ethically approved research project into chronic pain. 'Barriers and facilitators to...
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Karen Matthews
Jun 29, 20211 min read
UK Volunteers required to help test a questionnaire
The Therapies in Long Covid (TLC) Study led by the University of Birmingham in the UK (LongCovid SOS is a partner), is looking for...
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Long Covid SOS
Jun 29, 20213 min read
‘I remember’ - the Scottish Covid Memorial
Alec Finlay has been appointed to work on Scotland’s Covid memorial in the grounds of Glasgow’s Pollok Country Park. In this blog he talks
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Ondine Sherwood
Apr 15, 20211 min read
How are patient advocacy groups helping Long Covid recognition and research?
Amidst the uncertainty and life-changing symptoms of Long Covid, patients are uniting to amplify calls for recognition and further...
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Ondine Sherwood
Sep 8, 20203 min read
Long Covid SOS organise historical meeting with the WHO
This article was originally posted in the BMJ Blog and this extract has been reproduced with kind permission We have heard your message...
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Aug 9, 20200 min read
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haylock53
Aug 7, 20203 min read
Coronavirus and my children: why we need to think about schools
Each of us had our own idiosyncratic version of this virus, my son and partner had a dry cough, whilst my daughter and I had initial...
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