How are patient advocacy groups helping Long Covid recognition and research?

Amidst the uncertainty and life-changing symptoms of Long Covid, patients are uniting to amplify calls for recognition and further research. Long-term symptoms have a devastating affect on lives and livelihoods, and Long Covid has flipped the traditional narrative when it comes to research, with patients themselves leading the charge. In this episode of Covid in the News, hosts Monique and Tom spoke to Ondine Sherwood, co-founder of patient advocacy and support group LongCovidSOS. They talk about the patient agenda, how community-driven research has changed since the start of the pandemic, Long Covid and policy, and the key questions to be answered in the coming months



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UK Volunteers required to help test a questionnaire

The Therapies in Long Covid (TLC) Study led by the University of Birmingham in the UK (LongCovid SOS is a partner), is looking for volunteers with Long Covid to help test a questionnaire within an app