The Long Covid Groups say patients are being abandoned as dedicated clinics close despite a rise in UK cases
As the UK Covid-19 Inquiry resumes with a focus on healthcare systems in each of the four nations, the Long Covid Groups (comprising Long Co
top of page
In Crisis? Click here
Check out our new Gallery
Sign up to our Newsletter
Recognition - Research - Rehabilitation
NEWS
Long Covid SOS Team
- May 24
- 2 min
At the Covid Inquiry Cabinet Secretary Simon Case struggles under questioning from the Long Covid Groups' KC
Simon Case, the Cabinet Secretary and head of the Home Civil Service appeared belatedly at the Covid Inquiry yesterday in the final session
429
Long Covid SOS Team
- Apr 26
- 2 min
Why is the UK so sick? New ONS Long Covid prevalence data for England & Scotland estimates 2 million people with Long Covid
The new ONS data shows that in just 4 months, in England and Scotland, the number of people with Long Covid has increased by 9.9% to 2m. Tha
262
Long Covid SOS Team
- Apr 9
- 2 min
The Long Covid Groups respond to Maria Caulfield and request £80 million in new Long Covid funding for research
In December 2023, the Long Covid Groups - Long Covid SOS, Long Covid Support, Long Covid Physio and Long Covid Kids wrote to Prime Minister
134
Long Covid SOS Team
- Mar 27
- 3 min
Long Covid SOS launches leaflet to help GPs manage patient symptoms
More than half of Long Covid patients feel they’ve been given inadequate care while living with the condition and 27% say their GP struggled
647
Long Covid SOS Team
- Mar 15
- 2 min
Why create a Long Covid Bill of Rights?
As an advocacy charity, we know so many people with Long Covid are dismissed and feel isolated. We're demanding basic rights for LC people
227
Ondine Sherwood
- Feb 2
- 1 min
Joint Statement to the Scottish Government from UK Long Covid Charities
On January 31st an update was published to the Long Covid guidance on NHS Scotland's Inform platform.
It included several videos depicting
178
Ondine Sherwood
- Dec 6, 2023
- 4 min
Long Covid Groups Launch Campaign to Coincide with Boris Johnson’s Appearance at the Covid Inquiry
The Long Covid Groups are core participants in the Inquiry and comprise volunteer-led charities and associations Long Covid Support, Long Co
385
Long Covid SOS Team
- Nov 20, 2023
- 2 min
Long Covid SOS publish a brand new updated Resources page
We are very excited to announce that our new Resources page is now live on our website.
Our dedicated team members have been working very h
939
Long Covid SOS Team
- Nov 2, 2023
- 2 min
Our 2024 fundraising Calendar has arrived!
After the success of last year's fundraising calendar, we asked our friend Kim Horstmanshof if she would collaborate on another with us.
167
Long Covid SOS Team
- Oct 16, 2023
- 1 min
Long Covid SOS Co-founder gives evidence to the UK Covid Inquiry
On Friday 13th October, our Co-founder Ondine Sherwood provided witness evidence to the Covid Inquiry, on behalf of the Long Covid Groups
237
Long Covid SOS Team
- Oct 10, 2023
- 2 min
CAN YOU JOIN US AT THE COVID INQUIRY? Friday 13th October 2023
The Long Covid Groups, comprising Long Covid Kids, Long Covid SOS, and Long Covid Support are Core Participants in the UK Covid19 Inquiry.
134
Karen Matthews
- Oct 9, 2023
- 1 min
Contribute to Royal College of Speech and Language Therapist Guidance
Long Covid SOS have been working with the Royal College of Speech and Language Therapists for guidance on Long Covid. They now have an open
57
Long Covid SOS Team
- Oct 3, 2023
- 4 min
Long Covid Groups Express Dismay as it is revealed Boris Johnson believed Long Covid to be BOLLOCKS
The UK Covid-19 Inquiry Module 2, which is examining Core UK Decision-making and Political Governance during the pandemic, opened today. Ou
568
Long Covid SOS Team
- Sep 14, 2023
- 6 min
Long Covid Charities Express Their Anger at Being Excluded from Module 4 of the UK Covid Inquiry
Module 4 of the Covid-19 Inquiry opens this week and will examine the roll out of vaccines, therapeutics and anti-viral treatment across the
246
Ondine Sherwood
- Aug 31, 2023
- 3 min
The UK Government Needs to Expand Covid-19 Vaccination This Winter: letter to Steve Barclay MP
Today a letter has been sent to Secretary State for Health and Social Care Steve Barclay from the charity Long Covid SOS, urging the governm
368
Long Covid SOS Team
- Mar 17, 2023
- 2 min
Long Covid is a debilitating illness - not an opportunity to grab your readers' attention, BBC
This morning, the BBC published an article using Long Covid as a metaphor for a downturn in the tourist industry due to the pandemic:
321
Long Covid SOS Team
- Mar 15, 2023
- 2 min
Long Covid SOS Marks Long Covid Awareness Day with the Release of a New Film: Things Need To Change
Wednesday 15th March 2023 is the first annual International Long Covid Awareness day. Advocates from all over the world are uniting to push
372
Long Covid SOS Team
- Mar 1, 2023
- 3 min
Long Covid SOS Attend Module 3 Preliminary Hearing, UK Covid-19 Inquiry
Today Long Covid SOS along with three other Long Covid groups - Long Covid Kids, Long Covid Physio and Long Covid Support - were represente
337
Long Covid SOS Team
- Jan 30, 2023
- 3 min
Long Covid SOS writes to Health Secretary Steve Barclay: The UK Is Running Out Of Clean Air
Today, Long Covid SOS signed a letter along with 20 other organisations calling for the government to pass legislation to ensure people usin
1,015
Long Covid SOS Team
- Jan 20, 2023
- 4 min
Our response to BMJ paper suggesting most recover from Long Covid within a year
This paper in the BMJ was picked up by almost all news outlets leading to headlines which give a very inaccurate impression about the course
300
Long Covid SOS Team
- Nov 26, 2022
- 3 min
The Long Covid SOS 2023 fundraising calendar has arrived!
To celebrate our first Christmas as a charity our
friend and advocate Kim Horstmanshof has very kindly donated her beautiful photos to us
514
Long Covid SOS Team
- Nov 21, 2022
- 2 min
Long Covid SOS welcomes Dr Linda Baines as new Chair of Trustees
National Covid charity Long Covid SOS is pleased to announce today the appointment of Dr Linda Baines as their new Chair of Trustees.
195
Long Covid SOS Team
- Nov 17, 2022
- 1 min
House of Lords debate 17/11/22 Long Covid: What are the short- and long-term challenges?
This debate was proposed by Baroness Thornton (Labour), Non-executive Director, Whittington Health Hospital Trust
297
Long Covid SOS Team
- Oct 31, 2022
- 4 min
UK COVID-19 Inquiry: Long Covid SOS granted Core Participant Status along with 2 other Charities
Long Covid SOS announced today they have along with 2 others been granted core participant status in Module 2 of the UK Covid-19 Inquiry,
279
Long Covid SOS Team
- Oct 27, 2022
- 2 min
Our statement on the appointment of Secretary of State for Health and Social Care Steve Barclay MP
On behalf of the members of our charity we would like to congratulate Mr Barclay in his challenging role as Secretary of State for Health a
154
Long Covid SOS Team
- Sep 21, 2022
- 2 min
Long Covid SOS writes to new Health Secretary Thérèse Coffey
Long Covid SOS today congratulated new Health and Social Care Secretary Thérèse Coffey on her appointment and called for her to do more to
214
Karen Matthews
- Aug 30, 2022
- 1 min
Update to Therapies in Long Covid Study
TLC Newsletter July 2022
New publication - Long Covid and risk factors
We have a few updates for you on the TLC study...
We recently analyse
412
Ondine Sherwood
- Jul 6, 2022
- 2 min
Long Covid SOS responds to Matt Hancock: in the face of soaring cases there is "no cause for alarm"
Matt Hancock applauds the UK’s decision to end all legal Covid-19 restrictions and concludes that, despite rising infections due to yet anot
199
Karen Matthews
- Jun 2, 2022
- 1 min
Therapies in Long Covid Webinar Series
Long Covid SOS are partners on this study and we wish to disseminate this webinar series for those who wish to find out more about it.
349
Long Covid SOS Team
- May 19, 2022
- 3 min
Long Covid SOS join the launch of the Covid Safety Pledge
On 13th May 2022 a coalition including groups representing those who have been impacted by the pandemic launched the Covid-19 Safety Pledge
231
Karen Matthews
- May 16, 2022
- 1 min
NIHR Long Covid research update
The NIHR has launched new content to outline the wide range of research studies on understanding Long Covid
417
Long Covid SOS Team
- Mar 31, 2022
- 1 min
Long Covid was debated on 31/03/2022 in the House of Commons - watch it here
Long Covid was debated on 31/03/2022 in the House of Commons - watch it here
543
Long Covid SOS Team
- Feb 21, 2022
- 2 min
Statement in response to the Prime Minister’s announcement on 21/02/2022 removing all Covid measures
Today’s announcement from Boris Johnson is yet another blow to those who are living with the long term effects of Covid-19.
338
Long Covid SOS Team
- Feb 10, 2022
- 2 min
Statement from LongCovidSOS about further easing of restrictions announced by Boris Johnson 09/02/22
Statement from LongCovidSOS about further easing of restrictions announced by Prime Minister Boris Johnson on 9th February 2022
461
Ondine Sherwood
- Jan 11, 2022
- 4 min
"We cannot afford to let them down" The Health & Social Care Select Committee publishes their report
"Clearing the backlog caused by the pandemic" LongCovidSOS were asked to submit written evidence to this inquiry (see this post) and also...
727
Long Covid SOS Team
- Sep 18, 2021
- 10 min
LongCovidSOS submit evidence to the Health and Social Care Select Committee inquiry into the Backlog
We were asked to submit evidence to the committee's inquiry "Clearing the backlog caused by the pandemic" You can read our submission on th
489
Long Covid SOS Team
- Jul 15, 2021
- 3 min
LongCovidSOS writes to Sajid Javid: "We must take long covid into account when easing restrictions"
We ask you to urgently reconsider the timing of the removal of all measures to mitigate the spread of Covid-19. Any steps towards
177
Ondine Sherwood
- May 18, 2021
- 3 min
LongCovidSOS publish results of their survey into the impact of vaccination on Long Covid Symptoms
Since the rollout of the vaccine programme, there has been concern among those with Long Covid that vaccination could exacerbate their sympt
6,414
Ondine Sherwood
- Apr 22, 2021
- 3 min
Research is needed now to help people with Long Covid
This is an extract of a letter Long Covid SOS sent to the Secretary of State for Health and Social Care Matt Hancock in February 2021...
396
Ondine Sherwood
- Jan 14, 2021
- 1 min
Long Covid was debated on 14/01/2021 in the House of Commons - watch it here
You can watch the Q&A on YouTube here: https://youtu.be/zba6Un11dBM
444
Ondine Sherwood
- Jan 13, 2021
- 4 min
The risk of Long Covid must be a primary consideration in policy decisions
The potential for Covid-19 to cause significant morbidity is now recognised. We are asking you to please make Long Covid a primary consider
498
Ondine Sherwood
- Nov 16, 2020
- 4 min
Why 'Post Covid-19 Syndrome' is the wrong choice of name
‘Long Covid’ is a patient-derived term which, as has been acknowledged, has been embraced by the entire community of sufferers.
1,209
Ondine Sherwood
- Oct 14, 2020
- 4 min
LongCovidSOS Respond to the NHS 5 Part Package of measures to help Long Covid patients
You can read about the measures here This feedback has been shared with NHS England Thank you Professor Powis for responding to the Open...
577
haylock53
- Sep 19, 2020
- 2 min
LongCovidSOS Starts Conversation with NHS England about Long Covid Services
LongCovidSOS met with NHS England to discuss treatment and services for those with Long Covid.
688
Ondine Sherwood
- Sep 10, 2020
- 1 min
Matt Hancock acknowledges Long Covid at the Health and Social Care Committee
Long covid has at last been acknowledged by the UK Government. Two months after our Open Letter was sent to Boris Johnson, Matt Hancock...
580
-
- Aug 7, 2020
- 3 min
LongCovidSOS respond to the new NHS 'Your Covid Recovery' service
We welcome the Your Covid Recovery portal but believe at present it cannot fully address the needs of the majority of Long Covid sufferers.
644
haylock53
- Aug 6, 2020
- 2 min
Where does the UK government stand on Long Covid?
When we first started our campaign, our primary goal, was to achieve recognition by the U.K. government. Though we’ve yet to achieve that...
155
haylock53
- Aug 5, 2020
- 1 min
Long Covid sufferers present evidence to the All Party Parliamentary Group on Coronavirus
Sufferers from the Long Covid Support Group were called on today to present evidence to the U.K. All Party Parliamentary Group, formed to...
93
haylock53
- Jul 31, 2020
- 1 min
LongCovidSOS feature in a Financial Times article on Long Covid
Two members of LongCovidSOS, myself and Ondine Sherwood, have featured in an article in the Financial Times, discussing #LongCovid. Read...
113
bottom of page