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Recognition - Research - Rehabilitation
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In Honour of Ondine Sherwood
Long Covid SOS are heartbroken to share the loss of our co-founder, CEO, and beloved friend, Ondine, who passed away on Tuesday 11th March.
Long Covid SOS
Mar 122 min read


“TOO LITTLE, TOO LATE”, VALIDATION FOR PEOPLE WITH LONG COVID
Press Release: Inquiry exposes government failures behind the Long Covid crisis
Long Covid Groups welcome the Inquiry’s recognition of millions still suffering, and call for urgent national action.
Long Covid SOS
5 days ago5 min read


People with Long Covid are still being ignored: open letter to the Health Secretary
Unfortunately, more than five years on from the pandemic, we face the need to continually apply pressure to healthcare decision makers, and feel abandoned and ignored.
Long Covid SOS
Nov 131 min read


Invisible Disabilities Week 2025: Making the Invisible Visible - you do not have to see it to believe it.
From 19 to 25 October 2025, the UK will mark Invisible Disabilities Week, a time to celebrate strength, raise awareness, and recognise the millions of people living with conditions that may not be seen but are deeply felt.
Sarah Barley-McMullen
Oct 223 min read


World Mental Health Day 2025: When Overwhelm Becomes Too Much
Overwhelm, the theme of this year’s World Mental Health Day is one that resonates deeply with our community. Long Covid SOS volunteer Sarah Barley-McMullen shares important insights on how to cope with Long Covid and feelings of being overwhelmed.
Sarah Barley-McMullen
Oct 102 min read


Urgent action needed on Long Covid and Clinic Closures: letter to Ashley Dalton MP
This letter calls for urgent action to support people with Long Covid, pause clinic closures, and support the Long Covid SOS Bill of Rights
Long Covid SOS
Feb 282 min read


Introducing Dr Lucy Moore, our new Chair of Trustees
We are delighted to welcome Dr. Lucy Moore as the new Chair of Trustees for Long Covid SOS.
Long Covid SOS
Feb 262 min read


New ribbon pins for Long Covid Awareness Day - pre-orders open!
Discover our new Long Covid Awareness ribbon pin representing all that is positive and powerful about our community. Pre-order yours today
Long Covid SOS
Feb 152 min read


New resource available for GPs to help the millions with Long Covid get the healthcare they so badly need
Today the charity Long Covid SOS, in collaboration with the Clinical Post Covid Society is launching a new, improved and revised resource f
Long Covid SOS
Dec 10, 20244 min read


Long Covid SOS Responds to the NHS England 10 Year Plan Consultation
Long Covid affects approximately 2 million people in England and Scotland, and is causing significant health and economic burdens. It partic
Long Covid SOS
Dec 4, 20242 min read


Long Covid SOS calls for public health action as 6 out of 10 aware of the impact of Long Covid
Earlier this month, Long Covid SOS commissioned YouGov to find out more about attitudes to Long Covid in the UK population. We wanted to kn
Long Covid SOS
Oct 28, 20246 min read


Invisible Disabilities Week: What You Can’t See Can Still Hurt
The unifying reality of the experience of living with an invisib is that what you can’t see can still hurt—
often more than people realise.
Long Covid SOS
Oct 23, 20243 min read


The Importance of Good Mental Health When Living With Long Covid
Good mental health is more important than ever when living with Long Covid...
Long Covid SOS
Oct 10, 20242 min read


Black History Month: We Must Do More Than Acknowledge, We Must Act!
As we enter Black History Month, we honour the rich histories, cultures, and contributions of Black communities and other people of colour.
Long Covid SOS
Sep 30, 20245 min read


Pain Awareness Month: Understanding Chronic Pain in the Context of Long Covid
Chronic pain can change any aspect of a person's life, from how they move, think and sleep to how they spend time with loved ones...
Long Covid SOS
Sep 16, 20243 min read


The Long Covid Groups say patients are being abandoned as dedicated clinics close despite a rise in UK cases
As the UK Covid-19 Inquiry resumes with a focus on healthcare systems in each of the four nations, the Long Covid Groups (comprising Long Co
Long Covid SOS
Sep 8, 20243 min read


The Right to Funded Research:
Including Lived Experience at its Heart. In this the fifth and final instalment of our series unpacking the principles within the Long...
Long Covid SOS
Jun 3, 20243 min read


People with Long Covid Need Vaccine Boosters: Protecting the Vulnerable and Addressing Health Inequalities
The Covid-19 pandemic has left an enduring mark on countless lives across the globe. In England and Scotland alone, over 2 million people ha
Long Covid SOS
May 28, 20243 min read


At the Covid Inquiry Cabinet Secretary Simon Case struggles under questioning from the Long Covid Groups' KC
Simon Case, the Cabinet Secretary and head of the Home Civil Service appeared belatedly at the Covid Inquiry yesterday in the final session
Long Covid SOS
May 24, 20242 min read


We should not have to self advocate for clean air and care.
In the fourth instalment of our series of Blog Posts unpacking each principle within the Long Covid SOS Bill of Rights, we explore the cruci
Long Covid SOS
May 13, 20244 min read
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