top of page
ALL POSTS
Search
In Memory and Gratitude for Ondine Sherwood
Long Covid SOS exists because of the vision, determination and courage of our co-founder, Ondine Sherwood. We will always be grateful to her. Long Covid SOS just wouldn’t exist without her. When Long Covid SOS was established in 2020, Ondine was among a small group of patients determined to ensure that people living with this frightening new illness were seen, heard and taken seriously. At a time of fear and uncertainty, she persistently advocated to help give hope and a voic
Long Covid SOS
Aug 72 min read
Leading Improvement in Health and Care Podcast
What does NHS England's Quality Strategy mean in practice? A podcast with chair of Long Covid SOS Sarah Barley-McMullen
Long Covid SOS
Jul 301 min read
Our position on the iPaper article
Yesterday, 23rd July, the iPaper published an article on ME/CFS and Long Covid titled "75 people claim to be cured of chronic fatigue and long Covid. Here's how"
Long Covid SOS
Jul 252 min read
A New Chapter for Long Covid SOS: Leading with Lived Experience
This feels like the beginning of a new chapter for Long Covid SOS — one grounded firmly in lived experience, collaboration, and the unwavering belief that patients must remain at the centre of every conversation, every policy decision, and every research agenda about Long Covid.
Sarah Barley-McMullen
Jun 23 min read
Long Covid is a serious multi-system biomedical disease
Long Covid SOS writes to the Royal College of Psychiatrists expressing concern over forthcoming conference programme.
Long Covid SOS
May 112 min read
New Chair of Long Covid SOS places lived experience at the heart of governance
Long Covid SOS is pleased to announce the start of a new chapter placing lived experience at the heart of the charity’s leadership and governance
Long Covid SOS
Apr 222 min read
Long Covid groups call for urgent action as Inquiry report confirms widespread and ongoing healthcare failings
Long Covid advocacy groups today responded to the UK Covid-19 Inquiry’s Module 3 report on healthcare systems, saying its findings provide important validation for the experiences of the millions of people living with Long Covid.
Long Covid SOS
Mar 194 min read
“TOO LITTLE, TOO LATE”, VALIDATION FOR PEOPLE WITH LONG COVID
Press Release: Inquiry exposes government failures behind the Long Covid crisis
Long Covid Groups welcome the Inquiry’s recognition of millions still suffering, and call for urgent national action.
Long Covid SOS
Nov 20, 20255 min read
People with Long Covid are still being ignored: open letter to the Health Secretary
Unfortunately, more than five years on from the pandemic, we face the need to continually apply pressure to healthcare decision makers, and feel abandoned and ignored.
Long Covid SOS
Nov 13, 20251 min read
Invisible Disabilities Week 2025: Making the Invisible Visible - you do not have to see it to believe it.
From 19 to 25 October 2025, the UK will mark Invisible Disabilities Week, a time to celebrate strength, raise awareness, and recognise the millions of people living with conditions that may not be seen but are deeply felt.
Sarah Barley-McMullen
Oct 22, 20253 min read
World Mental Health Day 2025: When Overwhelm Becomes Too Much
Overwhelm, the theme of this year’s World Mental Health Day is one that resonates deeply with our community. Long Covid SOS volunteer Sarah Barley-McMullen shares important insights on how to cope with Long Covid and feelings of being overwhelmed.
Sarah Barley-McMullen
Oct 10, 20252 min read
In Honour of Ondine Sherwood
Long Covid SOS are heartbroken to share the loss of our co-founder, CEO, and beloved friend, Ondine, who passed away on Tuesday 11th March.
Long Covid SOS
Mar 12, 20252 min read
Urgent action needed on Long Covid and Clinic Closures: letter to Ashley Dalton MP
This letter calls for urgent action to support people with Long Covid, pause clinic closures, and support the Long Covid SOS Bill of Rights
Long Covid SOS
Feb 28, 20252 min read
Introducing Dr Lucy Moore, our new Chair of Trustees
We are delighted to welcome Dr. Lucy Moore as the new Chair of Trustees for Long Covid SOS.
Long Covid SOS
Feb 26, 20252 min read
New ribbon pins for Long Covid Awareness Day - pre-orders open!
Discover our new Long Covid Awareness ribbon pin representing all that is positive and powerful about our community. Pre-order yours today
Long Covid SOS
Feb 15, 20252 min read
New resource available for GPs to help the millions with Long Covid get the healthcare they so badly need
Today the charity Long Covid SOS, in collaboration with the Clinical Post Covid Society is launching a new, improved and revised resource f
Long Covid SOS
Dec 10, 20244 min read
Long Covid SOS Responds to the NHS England 10 Year Plan Consultation
Long Covid affects approximately 2 million people in England and Scotland, and is causing significant health and economic burdens. It partic
Long Covid SOS
Dec 4, 20242 min read
Long Covid SOS calls for public health action as 6 out of 10 aware of the impact of Long Covid
Earlier this month, Long Covid SOS commissioned YouGov to find out more about attitudes to Long Covid in the UK population. We wanted to kn
Long Covid SOS
Oct 28, 20246 min read
Invisible Disabilities Week: What You Can’t See Can Still Hurt
The unifying reality of the experience of living with an invisib is that what you can’t see can still hurt—
often more than people realise.
Long Covid SOS
Oct 23, 20243 min read
The Importance of Good Mental Health When Living With Long Covid
Good mental health is more important than ever when living with Long Covid...
Long Covid SOS
Oct 10, 20242 min read
bottom of page