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New ribbon pins for Long Covid Awareness Day - pre-orders open!
Discover our new Long Covid Awareness ribbon pin representing all that is positive and powerful about our community. Pre-order yours today
Long Covid SOS
Feb 152 min read
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Invisible Disabilities Week: What You Can’t See Can Still Hurt
The unifying reality of the experience of living with an invisib is that what you can’t see can still hurt—
often more than people realise.
Long Covid SOS
Oct 23, 20243 min read
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The Importance of Good Mental Health When Living With Long Covid
Good mental health is more important than ever when living with Long Covid...
Long Covid SOS
Oct 10, 20242 min read
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Black History Month: We Must Do More Than Acknowledge, We Must Act!
As we enter Black History Month, we honour the rich histories, cultures, and contributions of Black communities and other people of colour.
Long Covid SOS
Sep 30, 20245 min read
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Pain Awareness Month: Understanding Chronic Pain in the Context of Long Covid
Chronic pain can change any aspect of a person's life, from how they move, think and sleep to how they spend time with loved ones...
Long Covid SOS
Sep 16, 20243 min read
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The Right to Funded Research:
Including Lived Experience at its Heart. In this the fifth and final instalment of our series unpacking the principles within the Long...
Long Covid SOS
Jun 3, 20243 min read
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People with Long Covid Need Vaccine Boosters: Protecting the Vulnerable and Addressing Health Inequalities
The Covid-19 pandemic has left an enduring mark on countless lives across the globe. In England and Scotland alone, over 2 million people ha
Long Covid SOS
May 28, 20243 min read
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We should not have to self advocate for clean air and care.
In the fourth instalment of our series of Blog Posts unpacking each principle within the Long Covid SOS Bill of Rights, we explore the cruci
Long Covid SOS
May 13, 20244 min read
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Volunteering taught me how charities like Long Covid SOS provide vital lifelines for their followers
I volunteered as a social media assistant for Long Covid SOS from October 2023 to April 2024. My godmother, also a volunteer for the charity
Long Covid SOS
May 3, 20243 min read
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The Right to Support:
In the third instalment of our series of Blog Posts  unpacking each principle within the Long Covid SOS Bill of Rights, we look at the
Long Covid SOS
Apr 16, 20243 min read
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Navigating the Rocky Road: The Essential Right to a Diagnosis with Long Covid
In the second of our Blog Posts detailing each of the ‘rights’ in our Long Covid ‘Bill of Rights’, this time we focus on the ‘the right...
Long Covid SOS
Apr 4, 20243 min read
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The Importance of Being Believed when you have Long Covid
The sentiment expressed in the first principle of the Long Covid SOS Bill of Rights, "The Right to be Believed," resonates deeply with the
Ondine Sherwood
Mar 21, 20242 min read
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Why create a Long Covid Bill of Rights?
As an advocacy charity, we know so many people with Long Covid are dismissed and feel isolated. We're demanding basic rights for LC people
Long Covid SOS
Mar 15, 20242 min read
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Reflections, awareness? This is what it means to me.
Long Covid Awareness Day is nearly here. Those of us living with Long Covid, we are aware of it every day. It's within us, almost serpentine
Long Covid SOS
Mar 14, 20243 min read
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Emma Samms, Long Covid SOS patron, writes about living with an Invisible Illness - Long Covid
Please don’t tell me I’m looking well. Of course, when I’ve prepared for you to see me, I am looking well. As an actress, it’s my job.
Long Covid SOS
Feb 2, 20243 min read
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Disability History Month in the UK Long Covid: A New Disability
From November 16th to December 16th, the UK celebrates Disability History Month (UKDHM), providing a platform to explore the historical,...
Long Covid SOS
Nov 16, 20232 min read
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Where would you be if you could?
I Would be Here If I Could... Is an ambitious and disruptive art project which will be traveling
around the UK next year. Created by Alison
Long Covid SOS
Nov 1, 20232 min read
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The Cost of Friendship Can be Worth its Weight in Gold.
Some say that you really find out who your friends are when you become chronically ill. It’s true to some extent but friendship is still a
Long Covid SOS
Jun 8, 20232 min read
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We need Inclusive Advocacy for LGBTQ+ People Living with Long Covid and other Chronic Conditions.
Throughout Pride Month we are highlighting the inclusive advocacy needed for LGBTQ+ people living with Long COVID & other chronic condions
Long Covid SOS
May 31, 20233 min read
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Nurturing Mental Health: A Vital Journey for Those Living with Chronic Conditions
Throughout Mental Health Awareness week we will being focusing on Long Covid Wellbeing.
Living with a chronic condition such as Long Covid
Long Covid SOS
May 16, 20233 min read
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