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An open letter to Yvette Cooper -Secretary of State for Health and Social Care
We have written to the new Secretary of State for Health and Social Care, Yvette Cooper, congratulating her on her new role and urging the government to recognise Long Covid as an ongoing public health challenge and to take action for the millions of people affected.
Long Covid SOS
Aug 244 min read


Recognition. Research. Rights.
At Long Covid SOS, we are making an important change: replacing our third R from Rehabilitation to Rights.
Long Covid SOS
Aug 212 min read


UK Organization Long Covid SOS Endorses Patient-Led Journalism Ethics Complaint Against WIRED
Transatlantic partnership underscores the growing and global movement demanding responsible, ethical reporting on chronic conditions like Long COVID and ME.
Long Covid SOS
Aug 194 min read


Leading Improvement in Health and Care Podcast
What does NHS England's Quality Strategy mean in practice? A podcast with chair of Long Covid SOS Sarah Barley-McMullen
Long Covid SOS
Jul 301 min read


Our position on the iPaper article
Yesterday, 23rd July, the iPaper published an article on ME/CFS and Long Covid titled "75 people claim to be cured of chronic fatigue and long Covid. Here's how"
Long Covid SOS
Jul 252 min read


Long Covid is a serious multi-system biomedical disease
Long Covid SOS writes to the Royal College of Psychiatrists expressing concern over forthcoming conference programme.
Long Covid SOS
May 112 min read


New Chair of Long Covid SOS places lived experience at the heart of governance
Long Covid SOS is pleased to announce the start of a new chapter placing lived experience at the heart of the charity’s leadership and governance
Long Covid SOS
Apr 222 min read


Long Covid groups call for urgent action as Inquiry report confirms widespread and ongoing healthcare failings
Long Covid advocacy groups today responded to the UK Covid-19 Inquiry’s Module 3 report on healthcare systems, saying its findings provide important validation for the experiences of the millions of people living with Long Covid.
Long Covid SOS
Mar 194 min read


“TOO LITTLE, TOO LATE”, VALIDATION FOR PEOPLE WITH LONG COVID
Press Release: Inquiry exposes government failures behind the Long Covid crisis
Long Covid Groups welcome the Inquiry’s recognition of millions still suffering, and call for urgent national action.
Long Covid SOS
Nov 20, 20255 min read


People with Long Covid are still being ignored: open letter to the Health Secretary
Unfortunately, more than five years on from the pandemic, we face the need to continually apply pressure to healthcare decision makers, and feel abandoned and ignored.
Long Covid SOS
Nov 13, 20251 min read


In Honour of Ondine Sherwood
Long Covid SOS are heartbroken to share the loss of our co-founder, CEO, and beloved friend, Ondine, who passed away on Tuesday 11th March.
Long Covid SOS
Mar 12, 20252 min read


Urgent action needed on Long Covid and Clinic Closures: letter to Ashley Dalton MP
This letter calls for urgent action to support people with Long Covid, pause clinic closures, and support the Long Covid SOS Bill of Rights
Long Covid SOS
Feb 28, 20252 min read


Introducing Dr Lucy Moore, our new Chair of Trustees
We are delighted to welcome Dr. Lucy Moore as the new Chair of Trustees for Long Covid SOS.
Long Covid SOS
Feb 26, 20252 min read


New ribbon pins for Long Covid Awareness Day - pre-orders open!
Discover our new Long Covid Awareness ribbon pin representing all that is positive and powerful about our community. Pre-order yours today
Long Covid SOS
Feb 15, 20252 min read


New resource available for GPs to help the millions with Long Covid get the healthcare they so badly need
Today the charity Long Covid SOS, in collaboration with the Clinical Post Covid Society is launching a new, improved and revised resource f
Long Covid SOS
Dec 10, 20244 min read


Long Covid SOS Responds to the NHS England 10 Year Plan Consultation
Long Covid affects approximately 2 million people in England and Scotland, and is causing significant health and economic burdens. It partic
Long Covid SOS
Dec 4, 20242 min read


Long Covid SOS calls for public health action as 6 out of 10 aware of the impact of Long Covid
Earlier this month, Long Covid SOS commissioned YouGov to find out more about attitudes to Long Covid in the UK population. We wanted to kn
Long Covid SOS
Oct 28, 20246 min read


The Long Covid Groups say patients are being abandoned as dedicated clinics close despite a rise in UK cases
As the UK Covid-19 Inquiry resumes with a focus on healthcare systems in each of the four nations, the Long Covid Groups (comprising Long Co
Long Covid SOS
Sep 8, 20243 min read


At the Covid Inquiry Cabinet Secretary Simon Case struggles under questioning from the Long Covid Groups' KC
Simon Case, the Cabinet Secretary and head of the Home Civil Service appeared belatedly at the Covid Inquiry yesterday in the final session
Long Covid SOS
May 24, 20242 min read


Why is the UK so sick? New ONS Long Covid prevalence data for England & Scotland estimates 2 million people with Long Covid
The new ONS data shows that in just 4 months, in England and Scotland, the number of people with Long Covid has increased by 9.9% to 2m. Tha
Long Covid SOS
Apr 26, 20242 min read
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