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A New Chapter for Long Covid SOS: Leading with Lived Experience
This feels like the beginning of a new chapter for Long Covid SOS — one grounded firmly in lived experience, collaboration, and the unwavering belief that patients must remain at the centre of every conversation, every policy decision, and every research agenda about Long Covid.
Sarah Barley-McMullen
Jun 23 min read


New Chair of Long Covid SOS places lived experience at the heart of governance
Long Covid SOS is pleased to announce the start of a new chapter placing lived experience at the heart of the charity’s leadership and governance
Long Covid SOS
Apr 222 min read


In Honour of Ondine Sherwood
Long Covid SOS are heartbroken to share the loss of our co-founder, CEO, and beloved friend, Ondine, who passed away on Tuesday 11th March.
Long Covid SOS
Mar 12, 20252 min read


Introducing Dr Lucy Moore, our new Chair of Trustees
We are delighted to welcome Dr. Lucy Moore as the new Chair of Trustees for Long Covid SOS.
Long Covid SOS
Feb 26, 20252 min read
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