RECOGNITION

A Timeline of Long Covid SOS activity since July 2020 to further recognition of Long Covid

Sept 2022

Two members of Long Covid SOS, trustee Karen Matthews and volunteer Susannah Thompson take part in the Long COVID Physio International Forum

Sept 2022

June 2022

Long Covid SOS becomes a registered charity

June 2022

June 2022

Long Covid SOS appear on COVID-19 Open Online Briefings
with Dr David Nabarro

June 2022

May 2022

Long Covid SOS join the launch of the Independent Sage Covid Safety Pledge initiative

May 2022

March 2022

Our co-founder Lyth appeared in this NIHR national webinar about latest Long COVID trials

March 2022

Feb 2022

Our Vaccine study is cited by UKHSA in the briefing 'The effectiveness of vaccination against long COVID'

Feb 2022

Feb 2022

We send out a press release warning about the impact of ending all Covid restrictions, covered in i News

Feb 2022

Jan 2022

The Health and Social Care Select Committee publish their report, the section on Long Covid is informed by our submission

Jan 2022

Jan 2022

The Big Issue includes Long Covid SOS as a Changemaker 'campaigning to help creative positive change' in health and sport

Jan 2022

Oct 2021

We partner with the Royal College of General Practitioners in a series of educational webinars for GPs (not available to the public)

Oct 2021

Sept 2021

Our co-founder talks to Julia Hartley-Brewer about the latest ONS data on Long Covid

Sept 2021

Sept 2021

We submitted evidence to the Health and Social Care Select Committee inquiry into the NHS backlog and appeared in front of the committee

Sept 2021

Aug 2021

We partner with Asthma + Lung UK to advise them on the creation of the My Long COVID Needs assessment tool

Aug  2021

Aug 2021

Our co-founder is interviewed by Julia Hartley Brewer on Talk Radio

Aug 2021

July 2021

Our co-founder appeared on BBC Newsnight: “People’s lives have been radically changed and they just cannot get back to where they were before.”

July 2021

July 2021

Our co-founder is interviewed along with Vicky van der Togt by John Campbell

July 2021

July 2021

Our co-founder tells Julia Hartley Brewer "We should be concerned" as almost 400,000 suffer long Covid symptoms for over a year

July 2021

July 2021

We wrote to our Health Secretary Sajid Javid in response to the plan to remove all restrictions on July 19th, our letter was printed in the BMJ

July 2021

July 2021

We wrote to the Prime Minister through our lawyers Bhatt Murphy calling for the inclusion in the forthcoming Public Inquiry of people with Long Covid and for the inquiry to take place as soon as possible.

July 2021

June 2021

Two members of Long Covid SOS are appointed Patient and Public Voice Partners for NHS England

June 2021

May 2021

We published a resource for employees on our website with links to support organisations

May 2021

Mar 2021

March 2021 saw the launch of our survey in collaboration with academics on the impact of vaccines on Long Covid. It is the largest to date on this subject and the peer reviewed paper has now been published

Mar 2021

Feb 2021

We wrote to Matt Hancock in February 2020 to ask for more research funding to help develop urgent treatments for people with Long Covid. The second NIHR Long Covid call was announced in March

Feb 2021

Feb 2021

In February we became partners in the NIHR funded University of Birmingham TLC Long Covid research project

Feb 2021

Jan 2021

We anticipated the pressure to lift #COVID19 measures after vulnerable groups were vaccinated back in January 2021 and wrote to Boris Johnson to urge the government to take #LongCovid into account when making policy decisions

Jan 2021

Oct 2020

Members of Long Covid SOS are members of the NICE Expert Group on Long Covid. We wrote to them in October 2020 to protest at the proposed renaming of Long Covid as Post Covid Syndrome

Oct 2020

Oct 2020

Our co-founder appeared on BBC Womens Hour along with Dr Nisreen Alwan in October 2020

Oct 2020

Oct 2020

In October 2020 we began to highlight the issue of Long Covid in children

Oct 2020

Sept 2020

Our advocacy is highlighted in a UK Parliament Rapid Response post 'Short and long term health effects of COVID-19'

Sept 2020

Sept 2020

In September we met with Prof Stephen Powis, Medical Director NHSE and his team from NHS England. We started a dialogue to provide the patient perspective and press for better care for people with Long Covid which is ongoing

Sept 2020

Aug 2020

At the end of August we organised an historic meeting with the WHO. 'We have received your SOS. We have heard loud and clear that Long Covid needs recognition, guidelines, research and ongoing patient input and narratives': Dr Tedros

Aug 2020

Aug 2020

The FT covered the story in August 2020. "The government has to wake up and realise we might be dealing with a really big problem here, affecting hundreds of thousands"

Aug 2020

July 2020

Our film was featured on ITV News later in July 2020

July 2020

July 2020

Our Open Letter to Boris Johnson was copied to all sitting MPs and health policymakers

July 2020

July 2020

We launched our film "Message in a Bottle". It has been translated into five languages and has been viewed more than 90,000 times

July 2020