Long Covid SOS writes to Health Secretary Steve Barclay: The UK Is Running Out Of Clean Air. The letter was signed by 20 other organisations calling for the government to pass legislation to ensure people using indoor public spaces are protected from airborne pathogens.
Along with Pandemic Aid Networks and Long Covid Kids we write to the BMJ to highlight the flaws in a highly publicised study which suggests that most people with Long Covid recover within a year
We wrote to the Prime Minister through our lawyers Bhatt Murphy calling for the inclusion in the forthcoming Public Inquiry of people with Long Covid and for the inquiry to take place as soon as possible.
March 2021 saw the launch of our survey in collaboration with academics on the impact of vaccines on Long Covid. It is the largest to date on this subject and the peer reviewed paper has now been published
We wrote to Matt Hancock in February 2020 to ask for more research funding to help develop urgent treatments for people with Long Covid. The second NIHR Long Covid call was announced in March
We anticipated the pressure to lift #COVID19 measures after vulnerable groups were vaccinated back in January 2021 and wrote to Boris Johnson to urge the government to take #LongCovid into account when making policy decisions
Members of Long Covid SOS are members of the NICE Expert Group on Long Covid. We wrote to them in October 2020 to protest at the proposed renaming of Long Covid as Post Covid Syndrome
In September we met with Prof Stephen Powis, Medical Director NHSE and his team from NHS England. We started a dialogue to provide the patient perspective and press for better care for people with Long Covid which is ongoing
At the end of August we organised an historic meeting with the WHO. 'We have received your SOS. We have heard loud and clear that Long Covid needs recognition, guidelines, research and ongoing patient input and narratives': Dr Tedros
The FT covered the story in August 2020. "The government has to wake up and realise we might be dealing with a really big problem here, affecting hundreds of thousands"
