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At Long Covid SOS, we are making an important change: replacing our third R from Rehabilitation to Rights.

This feels like the beginning of a new chapter for Long Covid SOS — one grounded firmly in lived experience, collaboration, and the unwavering belief that patients must remain at the centre of every conversation, every policy decision, and every research agenda about Long Covid.

Long Covid SOS is pleased to announce the start of a new chapter placing lived experience at the heart of the charity’s leadership and governance