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Long Covid SOS calls for public health action as 6 out of 10 aware of the impact of Long Covid
Earlier this month, Long Covid SOS commissioned YouGov to find out more about attitudes to Long Covid in the UK population. We wanted to kn
Long Covid SOS
Oct 28, 20246 min read


Invisible Disabilities Week: What You Can’t See Can Still Hurt
The unifying reality of the experience of living with an invisib is that what you can’t see can still hurt—
often more than people realise.
Long Covid SOS
Oct 23, 20243 min read


The Importance of Good Mental Health When Living With Long Covid
Good mental health is more important than ever when living with Long Covid...
Long Covid SOS
Oct 10, 20242 min read


Black History Month: We Must Do More Than Acknowledge, We Must Act!
As we enter Black History Month, we honour the rich histories, cultures, and contributions of Black communities and other people of colour.
Long Covid SOS
Sep 30, 20245 min read


Pain Awareness Month: Understanding Chronic Pain in the Context of Long Covid
Chronic pain can change any aspect of a person's life, from how they move, think and sleep to how they spend time with loved ones...
Long Covid SOS
Sep 16, 20243 min read


The Long Covid Groups say patients are being abandoned as dedicated clinics close despite a rise in UK cases
As the UK Covid-19 Inquiry resumes with a focus on healthcare systems in each of the four nations, the Long Covid Groups (comprising Long Co
Long Covid SOS
Sep 8, 20243 min read


The Right to Funded Research:
Including Lived Experience at its Heart. In this the fifth and final instalment of our series unpacking the principles within the Long...
Long Covid SOS
Jun 3, 20243 min read


People with Long Covid Need Vaccine Boosters: Protecting the Vulnerable and Addressing Health Inequalities
The Covid-19 pandemic has left an enduring mark on countless lives across the globe. In England and Scotland alone, over 2 million people ha
Long Covid SOS
May 28, 20243 min read


At the Covid Inquiry Cabinet Secretary Simon Case struggles under questioning from the Long Covid Groups' KC
Simon Case, the Cabinet Secretary and head of the Home Civil Service appeared belatedly at the Covid Inquiry yesterday in the final session
Long Covid SOS
May 24, 20242 min read


We should not have to self advocate for clean air and care.
In the fourth instalment of our series of Blog Posts unpacking each principle within the Long Covid SOS Bill of Rights, we explore the cruci
Long Covid SOS
May 13, 20244 min read


The first Long Covid SOS Newsletter has arrived!
Welcome to our new Long Covid SOS Newsletter! This is a space for the Long Covid SOS team to share with you what has been going within the o
Long Covid SOS
May 10, 20241 min read


Volunteering taught me how charities like Long Covid SOS provide vital lifelines for their followers
I volunteered as a social media assistant for Long Covid SOS from October 2023 to April 2024. My godmother, also a volunteer for the charity
Long Covid SOS
May 3, 20243 min read


Why is the UK so sick? New ONS Long Covid prevalence data for England & Scotland estimates 2 million people with Long Covid
The new ONS data shows that in just 4 months, in England and Scotland, the number of people with Long Covid has increased by 9.9% to 2m. Tha
Long Covid SOS
Apr 26, 20242 min read


The Right to Support:
In the third instalment of our series of Blog Posts unpacking each principle within the Long Covid SOS Bill of Rights, we look at the
Long Covid SOS
Apr 16, 20243 min read


The Long Covid Groups respond to Maria Caulfield and request £80 million in new Long Covid funding for research
In December 2023, the Long Covid Groups - Long Covid SOS, Long Covid Support, Long Covid Physio and Long Covid Kids wrote to Prime Minister
Long Covid SOS
Apr 9, 20242 min read


Navigating the Rocky Road: The Essential Right to a Diagnosis with Long Covid
In the second of our Blog Posts detailing each of the ‘rights’ in our Long Covid ‘Bill of Rights’, this time we focus on the ‘the right...
Long Covid SOS
Apr 4, 20243 min read


Long Covid SOS launches leaflet to help GPs manage patient symptoms
More than half of Long Covid patients feel they’ve been given inadequate care while living with the condition and 27% say their GP struggled
Long Covid SOS
Mar 27, 20243 min read


The Importance of Being Believed when you have Long Covid
The sentiment expressed in the first principle of the Long Covid SOS Bill of Rights, "The Right to be Believed," resonates deeply with the
Ondine Sherwood
Mar 21, 20242 min read


Why create a Long Covid Bill of Rights?
As an advocacy charity, we know so many people with Long Covid are dismissed and feel isolated. We're demanding basic rights for LC people
Long Covid SOS
Mar 15, 20242 min read


Reflections, awareness? This is what it means to me.
Long Covid Awareness Day is nearly here. Those of us living with Long Covid, we are aware of it every day. It's within us, almost serpentine
Long Covid SOS
Mar 14, 20243 min read
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