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The first Long Covid SOS Newsletter has arrived!
Welcome to our new Long Covid SOS Newsletter! This is a space for the Long Covid SOS team to share with you what has been going within the o
Long Covid SOS
May 10, 20241 min read
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Volunteering taught me how charities like Long Covid SOS provide vital lifelines for their followers
I volunteered as a social media assistant for Long Covid SOS from October 2023 to April 2024. My godmother, also a volunteer for the charity
Long Covid SOS
May 3, 20243 min read
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Why is the UK so sick? New ONS Long Covid prevalence data for England & Scotland estimates 2 million people with Long Covid
The new ONS data shows that in just 4 months, in England and Scotland, the number of people with Long Covid has increased by 9.9% to 2m. Tha
Long Covid SOS
Apr 26, 20242 min read
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The Right to Support:
In the third instalment of our series of Blog Posts  unpacking each principle within the Long Covid SOS Bill of Rights, we look at the
Long Covid SOS
Apr 16, 20243 min read
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The Long Covid Groups respond to Maria Caulfield and request £80 million in new Long Covid funding for research
In December 2023, the Long Covid Groups - Long Covid SOS, Long Covid Support, Long Covid Physio and Long Covid Kids wrote to Prime Minister
Long Covid SOS
Apr 9, 20242 min read
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Navigating the Rocky Road: The Essential Right to a Diagnosis with Long Covid
In the second of our Blog Posts detailing each of the ‘rights’ in our Long Covid ‘Bill of Rights’, this time we focus on the ‘the right...
Long Covid SOS
Apr 4, 20243 min read
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Long Covid SOS launches leaflet to help GPs manage patient symptoms
More than half of Long Covid patients feel they’ve been given inadequate care while living with the condition and 27% say their GP struggled
Long Covid SOS
Mar 27, 20243 min read
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The Importance of Being Believed when you have Long Covid
The sentiment expressed in the first principle of the Long Covid SOS Bill of Rights, "The Right to be Believed," resonates deeply with the
Ondine Sherwood
Mar 21, 20242 min read
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Why create a Long Covid Bill of Rights?
As an advocacy charity, we know so many people with Long Covid are dismissed and feel isolated. We're demanding basic rights for LC people
Long Covid SOS
Mar 15, 20242 min read
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Reflections, awareness? This is what it means to me.
Long Covid Awareness Day is nearly here. Those of us living with Long Covid, we are aware of it every day. It's within us, almost serpentine
Long Covid SOS
Mar 14, 20243 min read
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Joint Statement to the Scottish Government from UK Long Covid Charities
On January 31st an update was published to the Long Covid guidance on NHS Scotland's Inform platform.
It included several videos depicting
Ondine Sherwood
Feb 2, 20241 min read
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Emma Samms, Long Covid SOS patron, writes about living with an Invisible Illness - Long Covid
Please don’t tell me I’m looking well. Of course, when I’ve prepared for you to see me, I am looking well. As an actress, it’s my job.
Long Covid SOS
Feb 2, 20243 min read
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Long Covid Groups Launch Campaign to Coincide with Boris Johnson’s Appearance at the Covid Inquiry
The Long Covid Groups are core participants in the Inquiry and comprise volunteer-led charities and associations Long Covid Support, Long Co
Ondine Sherwood
Dec 6, 20234 min read
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Long Covid SOS publish a brand new updated Resources page
We are very excited to announce that our new Resources page is now live on our website.
Our dedicated team members have been working very h
Long Covid SOS
Nov 20, 20232 min read
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Disability History Month in the UK Long Covid: A New Disability
From November 16th to December 16th, the UK celebrates Disability History Month (UKDHM), providing a platform to explore the historical,...
Long Covid SOS
Nov 16, 20232 min read
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Our 2024 fundraising Calendar has arrived!
After the success of last year's fundraising calendar, we asked our friend Kim Horstmanshof if she would collaborate on another with us.
Long Covid SOS
Nov 2, 20232 min read
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Where would you be if you could?
I Would be Here If I Could... Is an ambitious and disruptive art project which will be traveling
around the UK next year. Created by Alison
Long Covid SOS
Nov 1, 20232 min read
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Long Covid SOS Co-founder gives evidence to the UK Covid Inquiry
On Friday 13th October, our Co-founder Ondine Sherwood provided witness evidence to the Covid Inquiry, on behalf of the Long Covid Groups
Long Covid SOS
Oct 16, 20231 min read
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CAN YOU JOIN US AT THE COVID INQUIRY? Friday 13th October 2023
The Long Covid Groups, comprising Long Covid Kids, Long Covid SOS, and Long Covid Support are Core Participants in the UK Covid19 Inquiry.
Long Covid SOS
Oct 10, 20232 min read
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Contribute to Royal College of Speech and Language Therapist Guidance
Long Covid SOS have been working with the Royal College of Speech and Language Therapists for guidance on Long Covid. They now have an open
Karen Matthews
Oct 9, 20231 min read
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