Research is needed now to help people with Long Covid
This is an extract of a letter Long Covid SOS sent to the Secretary of State for Health and Social Care Matt Hancock in February 2021
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Ondine Sherwood
- Apr 15, 2021
- 1 min
How are patient advocacy groups helping Long Covid recognition and research?
Amidst the uncertainty and life-changing symptoms of Long Covid, patients are uniting to amplify calls for recognition and further...
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Ondine Sherwood
- Mar 16, 2021
- 1 min
LongCovidSOS launch Vaccine survey
Anecdotal evidence from support groups and a patient generated survey suggest that a proportion of people with Long Covid may derive benefit
370
Ondine Sherwood
- Jan 14, 2021
- 1 min
Long Covid was debated on 14/01/2021 in the House of Commons - watch it here
You can watch the Q&A on YouTube here: https://youtu.be/zba6Un11dBM
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Ondine Sherwood
- Jan 13, 2021
- 4 min
The risk of Long Covid must be a primary consideration in policy decisions
The potential for Covid-19 to cause significant morbidity is now recognised. We are asking you to please make Long Covid a primary consider
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Ondine Sherwood
- Nov 16, 2020
- 4 min
Why 'Post Covid-19 Syndrome' is the wrong choice of name
‘Long Covid’ is a patient-derived term which, as has been acknowledged, has been embraced by the entire community of sufferers.
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francessimpson
- Oct 18, 2020
- 2 min
Counting Long Covid in Children
LongCovidSOS continues to campaign tirelessly for the Long Covid community, with the aim of raising awareness of the condition in order...
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Ondine Sherwood
- Oct 14, 2020
- 4 min
LongCovidSOS Respond to the NHS 5 Part Package of measures to help Long Covid patients
You can read about the measures here This feedback has been shared with NHS England Thank you Professor Powis for responding to the Open...
569
kayw3211
- Sep 19, 2020
- 2 min
LongCovidSOS Starts Conversation with NHS England about Long Covid Services
LongCovidSOS met with NHS England to discuss treatment and services for those with Long Covid.
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Ondine Sherwood
- Sep 10, 2020
- 1 min
Matt Hancock acknowledges Long Covid at the Health and Social Care Committee
Long covid has at last been acknowledged by the UK Government. Two months after our Open Letter was sent to Boris Johnson, Matt Hancock...
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Ondine Sherwood
- Sep 8, 2020
- 3 min
Long Covid SOS organise historical meeting with the WHO
This article was originally posted in the BMJ Blog and this extract has been reproduced with kind permission We have heard your message...
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francessimpson
- Aug 7, 2020
- 3 min
Coronavirus and my children: why we need to think about schools
Each of us had our own idiosyncratic version of this virus, my son and partner had a dry cough, whilst my daughter and I had initial...
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- Aug 7, 2020
- 3 min
LongCovidSOS respond to the new NHS 'Your Covid Recovery' service
We welcome the Your Covid Recovery portal but believe at present it cannot fully address the needs of the majority of Long Covid sufferers.
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Lyth Hishmeh
- Aug 6, 2020
- 2 min
Where does the UK government stand on Long Covid?
When we first started our campaign, our primary goal, was to achieve recognition by the U.K. government. Though we’ve yet to achieve that...
150
Lyth Hishmeh
- Aug 5, 2020
- 1 min
Long Covid sufferers present evidence to the All Party Parliamentary Group on Coronavirus
Sufferers from the Long Covid Support Group were called on today to present evidence to the U.K. All Party Parliamentary Group, formed to...
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Lyth Hishmeh
- Jul 31, 2020
- 1 min
LongCovidSOS feature in a Financial Times article on Long Covid
Two members of LongCovidSOS, myself and Ondine Sherwood, have featured in an article in the Financial Times, discussing #LongCovid. Read...
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Lyth Hishmeh
- Jul 31, 2020
- 1 min
CDC acknowledges LongCovid
The US Centers for Disease Control and Prevention have officially recognized the fact that COVID-19 symptoms can last for a long time....
150
Lyth Hishmeh
- Jul 21, 2020
- 1 min
LongCovidSOS film on CNN
We’re delighted to announce that CNN has become the latest network to feature our Message in a Bottle film. We’re elated #LongCovid is...
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