top of page

In Crisis? Click here

Check out our new Gallery

Sign up to our Newsletter
Recognition - Research - Rehabilitation
ALL POSTS
Search


LongCovidSOS publish results of their survey into the impact of vaccination on Long Covid Symptoms
Since the rollout of the vaccine programme, there has been concern among those with Long Covid that vaccination could exacerbate their sympt
Ondine Sherwood
May 18, 20213 min read
Â
Â
Research is needed now to help people with Long Covid
This is an extract of a letter Long Covid SOS sent to the Secretary of State for Health and Social Care Matt Hancock in February 2021...
Ondine Sherwood
Apr 22, 20213 min read
Â
Â


How are patient advocacy groups helping Long Covid recognition and research?
Amidst the uncertainty and life-changing symptoms of Long Covid, patients are uniting to amplify calls for recognition and further...
Ondine Sherwood
Apr 15, 20211 min read
Â
Â


LongCovidSOS launch Vaccine survey
Anecdotal evidence from support groups and a patient generated survey suggest that a proportion of people with Long Covid may derive benefit
Ondine Sherwood
Mar 16, 20211 min read
Â
Â


Long Covid was debated on 14/01/2021 in the House of Commons - watch it here
You can watch the Q&A on YouTube here: https://youtu.be/zba6Un11dBM
Ondine Sherwood
Jan 14, 20211 min read
Â
Â


The risk of Long Covid must be a primary consideration in policy decisions
The potential for Covid-19 to cause significant morbidity is now recognised. We are asking you to please make Long Covid a primary consider
Ondine Sherwood
Jan 12, 20214 min read
Â
Â


Why 'Post Covid-19 Syndrome' is the wrong choice of name
‘Long Covid’ is a patient-derived term which, as has been acknowledged, has been embraced by the entire community of sufferers.
Ondine Sherwood
Nov 16, 20204 min read
Â
Â


Counting Long Covid in Children
LongCovidSOS continues to campaign tirelessly for the Long Covid community, with the aim of raising awareness of the condition in order...
haylock53
Oct 18, 20202 min read
Â
Â


LongCovidSOS Respond to the NHS 5 Part Package of measures to help Long Covid patients
You can read about the measures here This feedback has been shared with NHS England Thank you Professor Powis for responding to the Open...
Ondine Sherwood
Oct 14, 20204 min read
Â
Â


Long Covid SOS Starts Conversation with NHS England about Long Covid Services
Long Covid SOS met with NHS England to discuss treatment and services for those with Long Covid.
Long Covid SOS
Sep 19, 20202 min read
Â
Â


Matt Hancock acknowledges Long Covid at the Health and Social Care Committee
Long covid has at last been acknowledged by the UK Government. Two months after our Open Letter was sent to Boris Johnson, Matt Hancock...
Ondine Sherwood
Sep 10, 20201 min read
Â
Â


Long Covid SOS organise historical meeting with the WHO
This article was originally posted in the BMJ Blog and this extract has been reproduced with kind permission We have heard your message...
Long Covid SOS
Sep 8, 20203 min read
Â
Â


Coronavirus and my children: why we need to think about schools
Each of us had our own idiosyncratic version of this virus, my son and partner had a dry cough, whilst my daughter and I had initial...
haylock53
Aug 7, 20203 min read
Â
Â


LongCovidSOS respond to the new NHS 'Your Covid Recovery' service
We welcome the Your Covid Recovery portal but believe at present it cannot fully address the needs of the majority of Long Covid sufferers.
-
Aug 7, 20203 min read
Â
Â


Where does the UK government stand on Long Covid?
When we first started our campaign, our primary goal, was to achieve recognition by the U.K. government. Though we’ve yet to achieve that...
haylock53
Aug 6, 20202 min read
Â
Â


Long Covid sufferers present evidence to the All Party Parliamentary Group on Coronavirus
Sufferers from the Long Covid Support Group were called on today to present evidence to the U.K. All Party Parliamentary Group, formed to...
haylock53
Aug 5, 20201 min read
Â
Â
LongCovidSOS feature in a Financial Times article on Long Covid
Two members of LongCovidSOS, myself and Ondine Sherwood, have featured in an article in the Financial Times, discussing #LongCovid. Read...
Long Covid SOS
Jul 30, 20201 min read
Â
Â


CDC acknowledges LongCovid
The US Centers for Disease Control and Prevention have officially recognized the fact that COVID-19 symptoms can last for a long time....
haylock53
Jul 30, 20201 min read
Â
Â


LongCovidSOS film on CNN
We’re delighted to announce that CNN has become the latest network to feature our Message in a Bottle film. We’re elated #LongCovid is...
haylock53
Jul 20, 20201 min read
Â
Â
bottom of page

