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NIHR Long Covid research update
The NIHR has launched new content to outline the wide range of research studies on understanding Long Covid
Karen Matthews
May 16, 20221 min read
Qualitative (Interview based) Research Study in Chronic Pain - Call for Participants
We have been contacted by an MSc student about an ethically approved research project into chronic pain. 'Barriers and facilitators to...
Karen Matthews
May 16, 20221 min read
Long Covid was debated on 31/03/2022 in the House of Commons - watch it here
Long Covid was debated on 31/03/2022 in the House of Commons - watch it here
Long Covid SOS
Mar 31, 20221 min read
Statement in response to the Prime Minister’s announcement on 21/02/2022 removing all Covid measures
Today’s announcement from Boris Johnson is yet another blow to those who are living with the long term effects of Covid-19.
Long Covid SOS
Feb 21, 20222 min read
Statement from LongCovidSOS about further easing of restrictions announced by Boris Johnson 09/02/22
Statement from LongCovidSOS about further easing of restrictions announced by Prime Minister Boris Johnson on 9th February 2022
Long Covid SOS
Feb 10, 20222 min read
"We cannot afford to let them down" The Health & Social Care Select Committee publishes their report
"Clearing the backlog caused by the pandemic" LongCovidSOS were asked to submit written evidence to this inquiry (see this post) and also...
Ondine Sherwood
Jan 11, 20224 min read
LongCovidSOS submit evidence to the Health and Social Care Select Committee inquiry into the Backlog
We were asked to submit evidence to the committee's inquiry "Clearing the backlog caused by the pandemic" You can read our submission on th
Long Covid SOS
Sep 18, 202110 min read
LongCovidSOS writes to Sajid Javid: "We must take long covid into account when easing restrictions"
We ask you to urgently reconsider the timing of the removal of all measures to mitigate the spread of Covid-19. Any steps towards
Long Covid SOS
Jul 15, 20213 min read
UK Volunteers required to help test a questionnaire
The Therapies in Long Covid (TLC) Study led by the University of Birmingham in the UK (LongCovid SOS is a partner), is looking for...
Karen Matthews
Jun 29, 20211 min read
‘I remember’ - the Scottish Covid Memorial
Alec Finlay has been appointed to work on Scotland’s Covid memorial in the grounds of Glasgow’s Pollok Country Park. In this blog he talks
Long Covid SOS
Jun 29, 20213 min read
LongCovidSOS publish results of their survey into the impact of vaccination on Long Covid Symptoms
Since the rollout of the vaccine programme, there has been concern among those with Long Covid that vaccination could exacerbate their sympt
Ondine Sherwood
May 18, 20213 min read
Research is needed now to help people with Long Covid
This is an extract of a letter Long Covid SOS sent to the Secretary of State for Health and Social Care Matt Hancock in February 2021...
Ondine Sherwood
Apr 22, 20213 min read
How are patient advocacy groups helping Long Covid recognition and research?
Amidst the uncertainty and life-changing symptoms of Long Covid, patients are uniting to amplify calls for recognition and further...
Ondine Sherwood
Apr 15, 20211 min read
LongCovidSOS launch Vaccine survey
Anecdotal evidence from support groups and a patient generated survey suggest that a proportion of people with Long Covid may derive benefit
Ondine Sherwood
Mar 16, 20211 min read
Long Covid was debated on 14/01/2021 in the House of Commons - watch it here
You can watch the Q&A on YouTube here: https://youtu.be/zba6Un11dBM
Ondine Sherwood
Jan 14, 20211 min read
The risk of Long Covid must be a primary consideration in policy decisions
The potential for Covid-19 to cause significant morbidity is now recognised. We are asking you to please make Long Covid a primary consider
Ondine Sherwood
Jan 13, 20214 min read
Why 'Post Covid-19 Syndrome' is the wrong choice of name
‘Long Covid’ is a patient-derived term which, as has been acknowledged, has been embraced by the entire community of sufferers.
Ondine Sherwood
Nov 16, 20204 min read
Counting Long Covid in Children
LongCovidSOS continues to campaign tirelessly for the Long Covid community, with the aim of raising awareness of the condition in order...
haylock53
Oct 18, 20202 min read
LongCovidSOS Respond to the NHS 5 Part Package of measures to help Long Covid patients
You can read about the measures here This feedback has been shared with NHS England Thank you Professor Powis for responding to the Open...
Ondine Sherwood
Oct 14, 20204 min read
Long Covid SOS Starts Conversation with NHS England about Long Covid Services
Long Covid SOS met with NHS England to discuss treatment and services for those with Long Covid.
Long Covid SOS
Sep 19, 20202 min read
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